Why Family Assistance?
After traveling across the country, consulting with medical professionals, participating in events, and engaging with families in the community, we swiftly recognized the staggering expenses and challenges associated with caring for boys affected by this debilitating disease. Witnessing the profound demand for primary care in this community broke our hearts. We cannot comprehend the additional burden this disease would impose if we were unable to provide Finn with the exceptional care he deserves. Our goal for this program is to support as many families as possible within the DMD community.
Meet The Families
Neil and Neevian Tangsali
Meet the Tangsali Family! Finn’s Friends was honored to meet the Tangsali family and award both boys, Neil and Neevian who have DMD, with portable power wheelchairs. These wheelchairs make traveling to doctor appointments and activities outside of the home so much easier for the family.
Tushar, Neil and Neivvan's father wrote: “I want to thank you for everything you've done for our family. You've gone out of your way to help our family with the hotel reservations and the portable chairs, even though we have just known each other for so little time. May GOD bless Finn, you and your wonderful family”.
Meet the Carr Family! The Carr family had been raising money for the past few years to afford a wheelchair accessible van for their son Stephen. We had the pleasure of donating the remaining balance they needed to secure this life changing van.
Casey, Stephen's dad, said: “Bless you Dear Lady for all your help and all you do. We got our van yesterday.”
Meet the Monsivias Family! Axel was not able to utilize his power wheelchair at home because he did not have a ramp to access his house. Leaving his chair at school added a burden at home for his mom and dad who had to lift and carry him into and around the house.
Now that he has a ramp, he can bring his power chair home which makes life easier for him and his family and gives him the freedom to be mobile!
Meet the Mitchell Coker Family! Mitchell's mom was in desperate need of help with her living expenses. She has cared for Mitchell and his twin brother (who passed away from DMD), her whole life and was struggling to make ends meet. We were excited to have the opportunity to take some of the financial stress off of her shoulders.
Meet the Harker Family! We were excited to provide Josh with a portable ramp outside of his home to help with an easier transition from car to home.
Josh's Aunt, Sarah Harker Leary said: “Having the support of Finn's Friends in gaining the new portable aluminum wheelchair ramp for Josh, has helped us be able to get him into and out of our home and other places that he was not able to visit easily and confidently before. We greatly appreciate from the bottom of our hearts, the quick and ready assistance we received from this amazing organization and we will continue to advocate for Joshua as best we can to give him the best of life."
Meet Ethan Higginbotham. He is a junior at Wichita State University. He is currently living independently in an apartment, studying Physics and Astronomy. Finn's Friends was honored to partner with KSU PI Kappa Alpha to assist Ethan in getting a service dog. Einstein is now living with Ethan full-time and assists Ethan daily with tasks around his home and campus.
Brock and Graham Andrews
Meet the Andrews Family! They have 2 sons, Brock and Graham, who both have DMD. Brock is in a wheelchair full-time which makes getting around his own home a challenge. Chris Andrews (Dad) contacted us with their need for a bathroom modification to include a wheelchair accessible shower and a ceiling hoist to make showering for Brock safer and easier!
We were so happy to be able to provide financial assistance to help the Andrews family, Brock specifically, regain a sense of confidence and mobility when showering!
Meet Arjun. His mother reached out to us regarding a more accessible shower for him. This is what Padmaja had to say after completing his shower modification.
"The new shower completed yesterday will be great for Arjun and me in many ways, especially since he lost all mobility and his ability to stand."
"Our old shower was challenging to get in because of height issues, so we had to place towels on the bathroom floor since he had lost all mobility and ability to stand for the past couple of years. It became harder to lift him. He rolled his chair onto the towels, and then I showered him. He uses an office chair as he can still transfer himself from his bed to his office chair and wheelchair. We could not use a hoyer lift as he was not comfortable in a hoyer lift, and also, due to limited space, it was not easy to move the hoyer lift around. "
"After he was done showering, I had to clean up the water in the basement before it started leaking and then wash and dry the towels."
"Now I can easily roll him in and shower him with confidence. I plan on getting a shower wheelchair so he can roll into the shower. Also, I can give him frequent showers. "
Meet Victor Martinez! Victor desperately needed easier access to his bathroom. Finn's friend was able to widen the doorway so that his electric wheelchair could easily fit and make it easier and safer for his mother to assist him. We had the privilege of covering the cost of this modification!
Victor also needed a wheelchair-accessible van. From an early age, Victor used public bus transportation to and from school, making the days longer and adding stress for his mother. At our 2023 Golf Tournament, because of our generous supporters, we raised enough money to cover the remaining cost to secure Victor's van!